Help for Nathan! Please Check This Out Fellow L4Pers - Reply to Topic

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Topic Review (Newest First)

  • 10-21-2012, 07:28 PM
    Small donation made. My name is also Nathan. I wish this little guy all the best!
  • 08-01-2012, 03:45 PM

    Thank you

    Thanks Chip for introducing Nathan's story. Also thanks to Raw for allowing Chip to help out my family through your Forum.

    ~Mike and Rissa
  • 07-31-2012, 10:43 PM

    Help for Nathan! Please Check This Out Fellow L4Pers

    Raw has approved of this Post (Thanks Raw!)

    Basically, I have known the father Mike since I was in 5th grade, over 20 years. I am a twin and his two younger brothers are twins so we've all known each other for a long time. His wife is also from the area and her sisters are friends with my twin sister. Mike and his wife Rissa just had a baby a couple weeks ago and unfortunately found out he (Nathan) was born with Hallermann-Streiff-Francois Syndrome, which is going to require quite a few extensive and costly surgeries (something where the eyes, nose, mouth do not grow along with the rest of the body). This is something has only been documented in 1 out of every 40,000,000 (40 Million!!) kids, only 200 cases since it was first found. There is a much better description of the syndrome and all the side effects and characteristics. I know that there are quite a few philanthropic people on this site and I thought it couldn't hurt posting on here even if it just helps to spread the word around. I know they would be incredibly greatful for any donations, no matter how small. I'm going to try to get Mike to join on here so that he can thank anyone who does donate as well as answer any questions and maybe provide us with some status updates though I know he is going to be very busy. Thanks for your time! Please let me know if you have any questions. I really appreciate it!!

    The link to the donations is :

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